Resources for Caregivers
Navigating the role and responsibilities of caregiving can be rewarding as well as challenging. This section offers many references and resources to help you on your caregiving journey so that you can care for your loved one while also caring for yourself.
Our mission at Hospice & Community Care is to comfort and support those coping with serious illness and their families. One way that we can do this is to ensure that patients and caregivers have access to the information they need to make comfortable and informed decisions about end-of-life care.
Caregiving Resource Links
This section provides various and useful resources pertaining to end of life, as well as grief and loss. Each link will take you to a website not administered by Hospice & Community Care, and thus not all of the content listed can be described as endorsed by our organization. If you have questions at any time, please feel free to email us by clicking here, or call (717) 295-3900.
Aging With Dignity
Provides you with practical information, advice and tools you need to ensure that your wishes and those of your loved ones will be respected. Includes information for Five Wishes, a tool to create a living will which helps you express how you want to be treated if you are seriously ill and unable to speak for yourself.
American Cancer Society
Offers resources on diagnosis, treatment and research regarding ALS – amyotrophic lateral sclerosis.
The Alzheimer’s Association
This association, a world leader in Alzheimer research and support, and its website is dedicated to finding prevention methods, treatments and an eventual cure for Alzheimer’s. The website offers an online tool to find care in your community, and an online community of people from whom you can gain support and information.
Finds programs for people ages 55 and over that may pay for some of the costs of prescription drugs, health care, utilities and other services.
Offers some simple advice for family caregivers coping with the stress of day-to-day struggles in caring for a loved one.
A nationwide, non-commercial directory of community-based caregiver support services. Intended to help individuals who are providing care for a family member or friend. All services are free and completely confidential.
CarePages websites are free patient blogs that connect friends and family during a health challenge.
To help families stay in touch during difficult times, caregivers can start a personalized website using CaringBridge. Family and friends can offer support through guestbook messages. Caring Bridge websites feature a patient care journal to update loved ones, guestbook and photo gallery.
Provides free resources and information to help people make decisions about end-of-life care and services; helps people connect with the resources they need, when they need them; and brings together community, state and national partners working to improve end-of-life care. This website is an initiative of the National Hospice and Palliative Care Organization.
Provides a portal or international gateway to resources for life-threatening illness and end-of-life care. Their primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. A large search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.
An independent, charitable organization that assists financially needy individuals in obtaining prescription medications. The Foundation provides financial assistance to eligible individuals to pay insurance premiums or copayments.
Albright Life, (717) 381-4327
American Cancer Society, (888) 227-5445
Lancaster County Office of Aging, (717) 299-7979
United Way LINC—The Lancaster Information Center, (717) 291-5462
Lancaster County Council of Churches, (717) 291-2261
Independent resource of health care information and assistance for people with Medicare.
Provides information on public and private programs that offer discounted or free medication.
A resource guide to Medicaid with links to information about Medicaid services in all 50 states.
National Alliance for Caregiving
Each entry in the Family Care Resource Connection, at www.caregiving.org/content/fcrc.html, has been reviewed and rated for its quality, usefulness to family members, timeliness and accessibility. The resources are rated on a scale from four stars (the best) to one star. Reviews are prepared by experts in family caregiving and highlight the strengths and weaknesses of each item. Items include books, videos, websites, magazines, fact sheets and other resources addressing the range of issues and questions faced by family caregivers.
National Family Caregivers Association
Contains information and resources to educate, support and empower people who are caregivers for loved ones with chronic illness, disabilities or the frailties of old age. Connect with other caregivers through message boards, blogs and an event calendar.
National Health Council
Access to the most current news releases on a national level regarding health, with a focus to improve the health of all people, especially those with a chronic disease or disability. Information offered on conferences and other initiatives about such issues as family caregiving or how to find integrated, patient-centered care.
Provides information on the programs many drug companies have that give away free prescription medications to people who have no insurance and qualify for their programs. Allows you to access the information on the medication by searching by drug or by manufacturer.
Nursing Home Medicare and Medicaid Certification
Provides detailed information on the past performance of every Medicare and Medicaid certified nursing home in the country.
Patient Advocate Foundation
The Patient Advocate Foundation serves as a liaison between patients and their insurer, employer and/or creditor to resolve insurance, job retention and/or debt crisis matters relating to a patient’s condition.
Patient Services Incorporated
Assists patients with out-of-pocket expenses for patients as well as health insurance premiums.